The Stiff Person Syndrome Research Foundation
Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. #sps #TheSPSRF Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. Our mission is to raise awareness of Stiff Person Syndrome (SPS), to support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration.
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Home | The SPSRF 7 Years On average it takes 7 years to be diagnosed with SPS. 45 per 1MM SPSaffects 45people out of a million. Age 3050 Agewhen symptoms most commonly develop. 5 of cases Percentage of SPScasesreported in children.
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The Stiff Person Syndrome Research Foundation
Who Should Attend the 2025 SPS Symposium. Patients, families, caregivers, researchers, clinicians, and advocates—this event is for YOU. Whether you're living with SPS, supporting someone who is, or working to advance research and care, the SPS Symposium offers expert insights, real-world strategies, and a chance to connect with a compassionate community that understands.
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