The Stiff Person Syndrome Research Foundation
Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. #sps #TheSPSRF Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. Our mission is to raise awareness of Stiff Person Syndrome (SPS), to support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration.
ICO
842291780
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449
Address
Bethesda
Home | The SPSRF 7 Years On average it takes 7 years to be diagnosed with SPS. 45 per 1MM SPSaffects 45people out of a million. Age 3050 Agewhen symptoms most commonly develop. 5 of cases Percentage of SPScasesreported in children.
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News about The Stiff Person Syndrome Research Foundation from their social media (Facebook and X).
The SPSRF was proud to be represented last week at the 2025 CZI Rare As One Network meeting. (tw) ... more
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Discussions
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1. What strategies can we implement to raise awareness and improve the early diagnosis of Stiff Person Syndrome among healthcare professionals and the general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can we foster collaboration between researchers, medical professionals, and SPS patients to ensure that educational resources are both effective and accessible?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you for all the incredible work you're doing to raise awareness for Stiff Person Syndrome! Together, we can find a cure and support those affected. #EndSPS #HopeForPatients
Brooklyn Simmons
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🌟 It's so important to share knowledge about SPS and its challenges. Let’s unite to educate others and push for better treatments! Every voice matters in this fight! #ResearchAwarenessEducation #TheSPSRF
Brooklyn Simmons
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