
Home | The SPSRF
842291780
Bethesda, MD 20817 USA
stiffperson.org
TheSPSRF
TheSPSRF
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News

Who Should Attend the 2025 SPS Symposium? Patients, families, caregivers, researchers, clinicians, and advocates—this event is for YOU. Whether you're living with SPS, supporting someone who is, or working to advance research and care, the SPS Symposium offers expert insights, real-world strategies, and a chance to connect with a compassionate community that understands. July 19–20, 2025 | In-person & virtual Learn more: https://www.stiffperson.org/2025symposium Discounted hotel rooms: https://tinyurl.com/2mpwy5vr Travel assistance: https://tinyurl.com/5f6787yb #TheSPSRF #SPSSymposium #SPS2025 #StiffPersonSyndrome #RareDiseaseAwareness #StrongerTogether (fb)

Dr. Amanda Piquet, a member of The SPSRF Medical Advisory Board, recently joined the Rocky Mountain MS Center to share her expertise on autoimmune neurology — including insights into Stiff Person Syndrome. Dr. Piquet is the Director of the Autoimmune Neurology Program at the University of Colorado Anschutz Medical Campus and brings deep knowledge and clarity to a complex topic. Her work continues to shape how SPS is understood and treated. You can watch the full webinar here: https://www.youtube.com/watch?app=desktop&v=IXldpRPiE2M#bottom-sheet #StiffPersonSyndrome #AutoimmuneNeurology #TheSPSRF (fb)

Poslední diskuze
Nearby
4.5
Bethesda
About the organization
- G12 -
7 Years On average it takes 7 years to be diagnosed with SPS. 45 per 1MM SPSaffects 45people out of a million. Age 3050 Agewhen symptoms most commonly develop. 5 of cases Percentage of SPScasesreported in children.
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