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Similar organisations to The Stiff Person Syndrome Research Foundation

Community Rebuilding

Spastic Paraplegia Foundation, Inc.

Hereditary Spastic Paraplegia #hsp & Primary Lateral Sclerosis #pls together we are #HSPandPLS The Spastic Paraplegia Foundation is committed to promoting research to find cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, to educating people and their families affected by these conditions to help them live full and productive lives and to creating opportunities for mutual support and sharing.

Social Rank

313

Location

O'Fallon

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Community Rebuilding

Sjögren’s Foundation

Creating a community where patients, healthcare professionals & researchers come together to conquer the complexities of Sjögren's.

Social Rank

74884

Location

Reston

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

Social Rank

2304

Location

AUSTIN

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Community Rebuilding
  • Nerve, Muscle, and Bone Research

Joshuas Future of Promises Inc

Joshua’s Future Of Promises is a non-profit organization set up by Joshua Scoble’s family.

Social Rank

1900

Location

Emmaus

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Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

RSDSA's mission is to provide support, education, and hope to everyone affected by #CRPS / #RSD while we drive research to develop better treatment and a cure.

Social Rank

31901

Location

Milford

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Community Rebuilding

Scheuermanns Disease Fund

Scheuermann's Disease Fund - Raising Global Awareness for this Spinal Deformity The Scheuermann’s Disease Fund was created to improve the public's awareness and recognition of this spinal deformity, work towards improving early detection in adolescents, and to work with the medical community to better understand the long-term secondary effects Scheuermann's can cause.

Social Rank

2300

Location

MCMURRAY

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

Location

Delray Beach

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Community Rebuilding
  • Specifically Named Diseases

CURE ADSSL1

501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy Mission of the CURE ADSSL1 organization is to invest in research and develop treatment options for patients with rare neuromuscular disease caused by mutation in ADSSL1 gene.

Social Rank

20

Location

Glendale

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Community Rebuilding
  • Birth Defects, Genetic Diseases

Jack's Corner Foundation Inc.

Jack’s Corner is a nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease.

Location

Southport

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Community Rebuilding
  • Birth Defects, Genetic Diseases

Cure SPG4 Foundation

Home About SPG4 About Us Research Resources Contact More.

Location

San Antonio

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