Fibrolamellar Registry Inc

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The Fibrolamellar Registry: a source of hope and action for fibrolamellar hepatocellular carcinoma patients & families. Home of the FibroRegistry survey.

ICO

461463186

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359

X (Twitter)

39

Address

New York City

Address: 325 E 84th St, New York CityWeb: Sign in to see organisation websiteFacebook: fibroregistryX (Twitter): fibroregistryICO: 461463186

Home - The Fibrolamellar Registry Our Members Were patients and their loved ones from all around the world Our Researchers Leading scientists are using our data to advance fibrolamellar studies. Four major papers published so far. Our Goals Earlier diagnostics. Better treatments.

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Lucy

So grateful for the researchers using our shared experiences to pave the way for better treatments. Every story counts in this journey! Let's keep spreading awareness and hope! ๐ŸŒโœจ

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Victor

How can we better educate newly diagnosed patients and their families about the resources available through the Fibrolamellar Registry to enhance early diagnostics and treatment options?

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Monica

What strategies can we implement to encourage more patients and families to share their stories with the Fibrolamellar Registry, and how might this data impact the research outcomes?

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Patrick

Absolutely inspiring to see how the Fibrolamellar Registry is bringing hope to patients and families! Together, we can make a difference in the fight against this cancer. ๐Ÿ’ชโค๏ธ

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