Cri Du Chat Research Foundation Inc

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Cri Du Chat Research Foundation

CDCRF is a 501c3 Non-Profit supporting the development of a treatment for Cri du Chat / 5p- Syndrome. The mission of the Cri du Chat Research Foundation is to increase the information, advocacy and support of finding a treatment for Cri du Chat Syndrome. Our overall goal is to drive research forward from basic science knowledge of the disease to clinical trials to practical therapeutics which will improve the lives of those living with Cri du Chat Syndrome. The Foundation, its members and supporting community are committed to achieving this goal and objectives by raising the necessary funds and coordinating with researchers and other professionals to bring practical treatment into current medical practice. We hope that the advancement of our cause will lead to additional research support from government agencies, other funding sources and organizations around the globe.
471749667
EIN
2014
Founded
Brooklyn, NY 11223 USA
Address
criduchatresearch.org
Web
criduchatresearch
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Raising the bar through research Cri Du Chat Research Foundation Raising the bar through research. In 1963 Dr. Jerome Lejeune became the first person to research and describe the syndrome that eventually became known as Cri Du Chat 5pminus Syndrome. However the technology of that generation would only allow him and future researchers to scratch the surface of this rare genetic disorder that affects approximately 1 out of 15000 to 50000 live births a year.

Birth Defects, Genetic Diseases Research
23 Vacancy More Detail