• Public Foundations

• 1.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

DUP 15Q ALLIANCE

Through our work to raise awareness and promote research into chromosome 15q duplications, we seek to find targeted treatments so that affected individuals can live full and productive lives.

THE CLINIC FOR SPECIAL CHILDREN INC

A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.

• Fund Raising and/or Fund Distribution

• 4.

Dravet Syndrome Foundation, Inc.

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

5P SOCIETY

5p- Society is a national organization supporting individuals with 5p- syndrome and their families.

• Birth Defects, Genetic Diseases

• 6.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Disabled Persons' Rights

• 7.

Awesome Peoples Party for Ds Research Corporation

Home My Story Sponsors PAST EVENTS Donate More.

• Specifically Named Diseases

• 8.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.