Decoding Developmental Epilepsies
We serve two distinct communities. First, we serve those living with SCN8A and their families. Their resilience and hope inspire a network of support, uniting a global team of researchers, clinicians, epilepsy leadership groups, and pharmaceutical companies. Collaborating for a cure, we unite in our mission to advance the science of SCN8A, see improved outcomes and quality of life for everyone touched by SCN8A. Next, DEE-P Connections provides support for families of children with severe Developmental & Epileptic Encephalopathies (DEEs), including the undiagnosed DEEs. We offer webinars, a comprehensive resource center, and collaborative partnerships to share knowledge, breakthrough research efforts, and improved measurement tools for inclusion in clinical trials.
Founded
2019
Web
Sign in to see organisation website
Address
Washington
DDE Decoding Developmental Epilepsies Delivering Resources Research and Results. Join Us. Sign up with your email address to receive news and updates. Delivering Resources Research and Results to Families with Profound Genetic Epilepsies and SCN8ARelated Disorders.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Washington
Organisations from Decoding Developmental Epilepsies
A conservative, non-partisan educational foundation promoting transparency, accountability, and integrity in government.
The official Facebook page of the Nobel Prize.
Bipartisan campaign and government watchdog.
We prevent and alleviate human suffering in the face of emergencies.
5. Humane World for Animals International
Formerly the Humane Society of the United States and Humane Society International.
Similar organisations
Similar organisations to Decoding Developmental Epilepsies based on mission, location, activites.
CONGENITAL HYPERINSULINISM INTERNATIONAL
CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
Our mission is to end Duchenne.
We connect families, raise awareness, and fund research into Dandy-Walker Syndrome.
Enabling People With Epilepsy and Seizures To Take Charge of Their Lives.
Similar Organisations Worldwide
Organisations in the world similar to Decoding Developmental Epilepsies.
We are the UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care.
THE EDEN DORA TRUST FOR CHILDREN WITH ENCEPHALITIS LTD (uk)
We provide support to children and their families affected by childhood Encephalitis & Acquired Brain Injury www.
The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.
Interesting nearby
Interesting organisations close by to residence of Decoding Developmental Epilepsies
We connect DC-area students in Title 1 schools with authors, illustrators, and their books.
GEORGIA AVENUE FAMILY SUPPORT COLLABORATIVE
The Georgia Avenue Family Support Collaborative's (GAFSC) mission is to support children, youth and.
MOVEIUS Contemporary Ballet dba Dance Loft on 14
Dance Loft on 14 is a Washington DC arts venue, featuring affordable dance classes and performances.
Samaritan Ministry of Greater Washington
A partnership empowering DMV residents to overcome homelessness and unemployment, one step at a time.
Dance Institute of Washington, Inc.
EDUCATE.
Join us and make a difference for the future!
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Stacy
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
William
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Kira
Eduo is where compassion meets clarity.
Paul
I found my favorite volunteer opportunity thanks to Eduo!
Joanna
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Daniel
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
William
2025-10-24
🌊 Exciting news for early-career ocean professionals! The Pacific Community is seeking a Senior Programme Assistant to help combat ocean acidification and support sustainable development in the Pacific. Together, we can make a positive impact on our oceans! #OceanConservation #SPC #GoodNews
Senior Programme Assistant - Early Career Ocean Professionals (ECOP) & Ocean Acidification Monitoring (PIOAC) - Fiji
ReliefWeb
Like Comment
Monica
2025-10-24
🌟🎶 Exciting news from the Czech music scene! EJAE has just unveiled her heartfelt debut single "In Another World." It's a beautiful expression of vulnerability and authenticity. Let's celebrate her journey and the power of music to connect us all! #SupportLocalArtists #GoodNews 🌍❤️
EJAE Shows Her Vulnerable Side In New Single, 'In Another World'
Forbes
Like Comment