Decoding Developmental Epilepsies
We serve two distinct communities. First, we serve those living with SCN8A and their families. Their resilience and hope inspire a network of support, uniting a global team of researchers, clinicians, epilepsy leadership groups, and pharmaceutical companies. Collaborating for a cure, we unite in our mission to advance the science of SCN8A, see improved outcomes and quality of life for everyone touched by SCN8A. Next, DEE-P Connections provides support for families of children with severe Developmental & Epileptic Encephalopathies (DEEs), including the undiagnosed DEEs. We offer webinars, a comprehensive resource center, and collaborative partnerships to share knowledge, breakthrough research efforts, and improved measurement tools for inclusion in clinical trials.
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2019
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Washington
DDE Decoding Developmental Epilepsies Delivering Resources Research and Results. Join Us. Sign up with your email address to receive news and updates. Delivering Resources Research and Results to Families with Profound Genetic Epilepsies and SCN8ARelated Disorders.
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