AMERICAN EPILEPSY SOCIETY

American Epilepsy Society We are a community of professionals engaged in the understanding diagnosis study prevention treatment and cure with the goal of improving outcomes for persons with epilepsy.

EPILEPSY FOUNDATION NEW ENGLAND INC

EFNE leads the fight to stop seizures, find a cure and overcome challenges created by epilepsy.

• Fund Raising and/or Fund Distribution

• 3.

Dravet Syndrome Foundation, Inc.

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Fund Raising and/or Fund Distribution

• 5.

Arid1B Research Foundation

Accelerating the development of disease-modifying treatments for #ARID1B-RD (haploinsufficiency) - the most frequently mutated gene in de novo NDDs (ASD, ID).

• Alliance/Advocacy Organizations

• 6.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

• Epilepsy Research

• 7.

Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families Advancing epilepsy awareness.

• Epilepsy

• 8.

R P Epilepsy Foundation Inc

Mail Us drsumitvermayahoo. com Call Us 1 646 934 0936 RP Epilepsy Foundation Every life matters we do care for our patients Friendly personable care with no strings attached and no returns or expectations nonprofit About RP Epilepsy Foundation Play Now Our Services Pediatric Neurology EEGs From accurate diagnosis to personalized treatments we offer a range of services designed to support your childs unique needs.

• Birth Defects, Genetic Diseases

• 9.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.