Alpha-1 Foundation, Inc.

Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency. Facebook (Alpha-1 Foundation) & Instagram (Alpha1Foundation). Alpha-1 Antitrypsin Deficiency is a genetic condition that may result in lung and/or liver disease. The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.

Founded

1995

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21000

X (Twitter)

3001

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710216

Address: 3300 Ponce de Leon Blvd., Coral GablesWeb: alpha1.orgFacebook: Alpha1FoundationX (Twitter): alphafriendEmployees: 19Volunteers: 300Revenue: 10453299ICO: 650585415

Alpha-1 Foundation: Support & Awareness Secondary Navigation Main Navigation About Alpha1 Find an Alpha1 Support Group Near You Living with Alpha1 Alpha1 Education Alpha1 Research Join the Alpha1 Research Registry Get Involved Finding a cure for Alpha1 and improving the lives of those affected FEATURES Help Advance Alpha1 Research by Joining the Alpha1 Research Registry Attend the Omaha A1F Education Day on March 22nd Support Alpha1 Research at Celtic Connection on March 8th Watch Alpha1 Educational Presentations Using Our Video Library Find an Alpha1 Specialist Browse our database to find a doctor specializing in Alpha1. Filter by location or area of expertise to narrow down your search. OUR IMPACT Weve invested over 100 million into Alpha1 research and related programs From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure no other organization does more for families with Alpha1. 100M in research funded 130 researchers funded 10X the clinical trials within a decade TOP STORIES Mutated DNA Restored to Normal in Gene Therapy Advance Exciting breakthrough in Alpha1 research by Beam Therapeutics shows success in restoring the mutated Alpha1 gene to normal.

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News & Updates

From Social media

News about Alpha-1 Foundation, Inc. from their social media (Facebook and X).

A1F President and CEO Scott Santarella will open the upcoming Detroit A1F Education Day on Saturday, September 6th, with important updates for the Alpha-1 community. (tw) ... more

Liked (1) Commented (0)

The Alpha-1 community honors the life and legacy of Kathie Sivesind, a dedicated AlphaNet Coordinator who made a lasting impact through her support, compassion, and advocacy. (tw) ... more

Liked (0) Commented (0)
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1. What innovative strategies can the Alpha-1 Foundation implement to raise awareness about Alpha-1 Antitrypsin Deficiency within diverse communities?

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2. How can the Alpha-1 Foundation enhance collaboration with researchers and healthcare professionals to advance clinical trials and treatment options for patients?

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Brooklyn Simmons

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Together, we can make a real impact in communities around the world. Help us bring hope and support.

Proud to support the Alpha-1 Foundation! Every step towards awareness brings us closer to a cure. Let's keep fighting together! 💚 #Alpha1Awareness

Brooklyn Simmons
Brooklyn Simmons

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I can't wait for the Celtic Connection event! It's amazing to see our community come together to support such an important cause. Let's make a difference! 🍀 #FindACure #Alpha1Foundation

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Brooklyn Simmons

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