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We are changing how scientific research is done.
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Alphanet Inc
Not-for-profit health management organization assisting individuals with Alpha-1 Antitrypsin Deficie AlphaNet provides health management services to individuals diagnosed with Alpha-1 Antitrypsin Deficiency.
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PROJECT ALIVE
A Hunter syndrome research and advocacy foundation.
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Alpha 1 Association
Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency.
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Alliance/Advocacy Organizations
Alpha 1 Resource Group Inc
At Alpha1 Resource Group (A1R) we strive to enlighten, inspire and improve the quality of life for people living with Alpha-1 Antitrypsin Deficiency and their families OUR MEETINGS Advocate Support Educate Advise Collaborate OUR EVENTS Reaching out to touch the lives of others OUR MEMBERS Meet the people who make our mission possible Who We are.
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SETBP1 Society
President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.
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Birth Defects, Genetic Diseases Research
International FOXP1 Foundation
Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.
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Fund Raising and/or Fund Distribution
Believe in A Cure, Inc.
Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.
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Curemapk8Ip3 Foundation
Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.
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Specifically Named Diseases
CTNNB1 Connect and Cure Inc
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