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GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

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Alphanet Inc

Not-for-profit health management organization assisting individuals with Alpha-1 Antitrypsin Deficie AlphaNet provides health management services to individuals diagnosed with Alpha-1 Antitrypsin Deficiency.

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Alpha 1 Association

Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency.

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Community Rebuilding
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Alpha 1 Resource Group Inc

At Alpha1 Resource Group (A1R) we strive to enlighten, inspire and improve the quality of life for people living with Alpha-1 Antitrypsin Deficiency and their families OUR MEETINGS Advocate Support Educate Advise Collaborate OUR EVENTS Reaching out to touch the lives of others OUR MEMBERS Meet the people who make our mission possible Who We are.

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Community Rebuilding
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SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

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International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

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Community Rebuilding
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Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

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Curemapk8Ip3 Foundation

Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.

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Community Rebuilding
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CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.

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