📚 TCSF Virtual Book Club 🗓 Wednesday, May 28th 8:00- 8:30 PM Eastern 📍 Register here: bit.ly/3FdHFgK Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is a great way to unwind and share thoughts. This month, we’re discussing Say You’ll Remember Me by Abby Jimenez and The One by John Mars. All are welcome, even if you were unable to read the books. For more information, send us a message! (fb)

The Cute Syndrome Foundation proudly celebrates 12 years of impact, dedication, and hope. All month long, we’re spotlighting the groundbreaking research made possible by TCSF Grant recipients. Their work brings us closer to a brighter future for those affected by SCN8A. 🎁 Want to be part of the progress? Support projects like these by donating at givebutter.com/tcsf12. ______________________________ 🔬 Using Innovative Approaches to Explore a Holistic View of SCN8A-related Disorders "Thanks to the generous support from The Cute Syndrome Foundation, our team was able to meet and assess patients directly, pioneering new ways to objectively measure disease severity in SCN8A-related disorders. Traditional methods often miss crucial aspects of daily life impacted by SCN8A, such as movement, behavior, and communication. With the Foundation’s funding, we were able to apply our innovative approaches, including wearable devices and detailed video assessments, to better capture these important dimensions. These efforts will allow us to understand each patient's unique experience more accurately, ultimately informing personalized care and improving quality of life. The potential impact of this project is significant for the SCN8A community. By accurately defining the clinical spectrum of SCN8A disorders and identifying reliable biomarkers, our research could transform how families and doctors track disease progression, evaluate treatments, and improve patient outcomes. We're immensely grateful for The Cute Syndrome Foundation's partnership in this ongoing vital work!" -Dr. Dennis Lal, UTHealth Houston 2024 TCSF Research Funding Recipient (fb)