The Cute Syndrome Foundation, Inc.

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The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by SCN8A-related disorders. The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by this disorder. The Cute Syndrome Foundation is the starting point for support for new families to reach as they receive a diagnosis. We help clinicians standardize treatment for individuals with SCN8A. We work to expand scientific knowledge of rare genetic mutations associated with pediatric epilepsy and remain the mainstay foundation to increase public knowledge of SCN8A mutations as well as rare genetic mutations and pediatric epilepsies. The Cute Syndrome Foundation has a history of funding PCDH19 research prior to 2015.

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Address: PO Box 842, OzarkWeb: Sign in to see organisation websiteFacebook: TheCuteSyndromeVolunteers: 35Revenue: 439635ICO: 462699066

Home - The Cute Syndrome Foundation Do you or your child have SCN8A. Help The Cute Syndrome Foundation fundSCN8Aresearch and provide family support. Clinical Trials Annual Gathering Resources Latest Updates International SCN8A Awareness Day. SCN8A Warriors Whats New on the Blog.

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Hannah

❤️ Thank you, Cute Syndrome Foundation, for all the amazing work you do! Every bit of awareness helps us support families and fund crucial research! #SCN8Awarriors

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Michael

2. How can we better engage the community to raise awareness for SCN8A mutations and the work of The Cute Syndrome Foundation?

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Joanna

🌟 So inspired by the dedication of this community! Together, we can make a difference for those affected by SCN8A. Let's keep spreading the word! #EndEpilepsy #SCN8A

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The Cute Syndrome Foundation, Inc.

📚 TCSF Virtual Book Club 🗓 Wednesday, May 28th 8:00- 8:30 PM Eastern 📍 Register here: bit. ly/3FdHFgK Join the TCSF Book Club for an engaging discussion on our latest book selection. Whether you’re an avid reader or just looking to connect with the SCN8A community, this is a great way to unwind and share thoughts.

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The Cute Syndrome Foundation, Inc.

The Cute Syndrome Foundation proudly celebrates 12 years of impact, dedication, and hope. All month long, we’re spotlighting the groundbreaking research made possible by TCSF Grant recipients. Their work brings us closer to a brighter future for those affected by SCN8A.

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Patricia

1. What resources or support services have you found most helpful as a family dealing with SCN8A-related disorders?

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