• Birth Defects, Genetic Diseases

• 1.

Institute of Genetics

Provide Children Affordable Medicine Our Mission Empower.

• Professional Societies & Associations

• 2.

Society for Craniofacial Genetics and Developmental Biology Inc

The Society for Craniofacial Genetics and Developmental Biology was founded in 1975 to promote research, education, communication and policy.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 3.

Proteus Syndrome Foundation

The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research.

• Fund Raising and/or Fund Distribution

• 4.

The TBCD Foundation

The TBCD Foundation is a non-profit organization for and by the TBCD Disorder community to raise funds and awareness in order to pursue effective treatments and a cure for TBCD.

• Birth Defects, Genetic Diseases Research

• 5.

The Kat6a Foundation Inc

We support individuals who are living with KAT6A and KAT6B syndromes around the world.

• Birth Defects, Genetic Diseases

• 6.

Skraban-Deardorff Syndrome Foundation

The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome.

• Epilepsy Research

• 7.

Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families Advancing epilepsy awareness.

• Birth Defects, Genetic Diseases

• 8.

EBF3 HADDS Foundation

EBF3 HADDS FOUNDATION Home SupportDonate About Events Blog Shop More ARTICLES EVENTS BLOG CONNECT Learn more about what is happening globally with our community.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.