Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research. HSAN1E Society’s mission is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research through education, contributions and donations. Hereditary Sensory and Autonomic Neuropathy, Type 1E (HSAN1E) is an extremely rare hereditary adult on-set neurological degenerative disease that shuts down many of the nervous systems in the body.