HSAN1E Society

Follow Message Edit

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research. HSAN1E Society’s mission is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research through education, contributions and donations. Hereditary Sensory and Autonomic Neuropathy, Type 1E (HSAN1E) is an extremely rare hereditary adult on-set neurological degenerative disease that shuts down many of the nervous systems in the body.

ICO

475163620

Facebook

388

X (Twitter)

551

Address

Tracy

Address: P.O. Box 1264, TracyWeb: Sign in to see organisation websiteFacebook: HSAN1esocietyX (Twitter): Hsan1eSocietyICO: 475163620

HSAN1E Society | Support and encouragement for the HSAN1E community Support Encouragementfor the Community Make Your History Count. Welcome. HSAN1e Societys mission is to create awareness of HSAN1e and similar DNMT1 complex disorders to provide emotional support to families affected by these disorders and help facilitate research through education contributions and donations. Welcome.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Faith

Amazing to see a community coming together to support those impacted by HSAN1E. Let's keep spreading awareness and pushing for more research—every little bit helps! 🌟 #RareDisease #Advocacy

Like Comment
Veronica

- How can we improve emotional support services for families affected by HSAN1E, and what resources are currently lacking?

Like Comment
Monica

This is such an important cause! Grateful for the work HSAN1E Society is doing to raise awareness and provide support for families affected by this rare disease. 💙 #MakeYourHistoryCount

Like Comment
Monica

- What are some effective strategies for raising awareness about HSAN1E and other rare diseases within local communities?

Like Comment
Collected information

Data about organisation

Neurology, Neuroscience Category

Organisations with similar rank to HSAN1E Society in category Neurology, Neuroscience

64. Sleepy Heads, Inc.

We are a nonprofit organization dedicated to improving the quality of life for people with narcolepsy.

65. Irene & Eric Simon Brain Research Foundation Inc.

IES Brain Research Foundation encourages young scientists to enter the important field of brain research and focus public attention on the frequently overlooked area of basic research of the human brain.

66. HSAN1E Society

HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

68. VWM FAMILIES FOUNDATION INC

The VWM Families Foundation supports awareness, research efforts and families suffering with Vanishing White Matter disease (VWM).

More from Neurology, Neuroscience

Diseases, Disorders, Medical Disciplines N.E.C. Category

Organisations with similar rank to HSAN1E Society in category Diseases, Disorders, Medical Disciplines N.E.C.

133. HORSES AND HORIZONS THERAPEUTIC LEA RNING CENTER INC

Horses & Horizons TLC is a registered non-profit organization that has provided a special program of therapeutic horseback riding for children and adults with disabilities since 1993.

134. Juvenile Bipolar Research Foundation, Inc.

Research to determine etiology of juvenile onset bipolar so more effective treatments can be found.

135. HSAN1E Society

HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

136. Donnabellas Angels, Inc.

DonnaBellas Angels provides inspirational art for mental health wellness.

137. LOVE LIKE CRAZY FOUNDATION

Love Like Crazy Foundation loves families, shares knowledge about and supports research of mitochondrial disease, especially Pearson Syndrome.

More from Diseases, Disorders, Medical Disciplines N.E.C.

Tracy

Organisations from HSAN1E Society

15. Tracy Police Activities League

Tracy Police Activities League Executive Board of Directors: President- Lt.

16. Tracy Wrestling Club

Tracy Wrestling Club is committed to providing Tracy's youth with a top-level Wrestling Program.

17. HSAN1E Society

HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

18. Punyam

Punyam is a registered 501 (c )(3 )non-profit organization striving to provide food, education and economic support to the less fortunate.

19. Questa School Foundation

Questa School Foundation (QSF) is a nonprofit foundation dedicated to supporting Sebastian Questa Elementary School by raising funds from the community.

More from Tracy

Similar organisations

Similar organisations to HSAN1E Society based on mission, location, activites.

PCDH19 Alliance

Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to HSAN1E Society.

PARKINSONS.ME (uk)

Parkinsons.

GLUT1 DEFICIENCY UK (uk)

A parent led charity, dedicated to improving the lives of those affected by Glut1 Deficiency.

THE EHLERS-DANLOS SOCIETY (uk)

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.

FOXG1 RESEARCH FOUNDATION (AUSTRALIA) LTD (au)

The FOXG1 Research Foundation is the global organization dedicated to a cure for FOXG1 syndrome.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of HSAN1E Society

Pusong Pinoy Forever Foundation

"Doing nothing is NOT an option".

The Chest of Hope Inc

CoH provides housing, supportive services, resources and hope to those impacted by domestic violence.

HSAN1E Society

HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

Tracy Interfaith Ministries

Non-profit food pantry and clothing closet.

More Interesting nearby

Similar social media (939)

Organisations with similar social media impact to HSAN1E Society

170169. THE COLLABORATIVE EAGLE ROCK

The Collaborative Eagle Rock Beautiful engages neighbors, groups, and businesses to work together to add value to the community, by planting, preserving, .

170170. PERRYTON CHRISTIAN ACADEMY INC

PCA was founded to provide high academic standards in a Christ-centered environment for PreK - 8th.

170171. HSAN1E Society

HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

170172. United Community Services of Johnson County, Inc.

Enhancing the availability and delivery of health and human services by providing data analysis, leading collaborative planning and mobilizing resources.

170173. Impl. Project

Be humble, be curious.

Similar social media
Join us

Join us and make a difference for the future!

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Brooklyn Simmons
Paul

I found my favorite volunteer opportunity thanks to Eduo!

Brooklyn Simmons
Patrick

I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.

Brooklyn Simmons
Joanna

Eduo connects you to causes that actually matter to you.

Brooklyn Simmons
Kira

Eduo is where compassion meets clarity.

Brooklyn Simmons
Daniel

Clean, community-driven, and full of heart — love it.

Brooklyn Simmons
Yvette
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Peter 2025-10-21

"Exciting news from Florida! 🌟 Senator Alexis Calatayud highlights a creative solution to the housing crisis: repurposing church land for affordable housing. 🙌 Faith and collaboration can pave the way for positive change in our communities. Let's support innovative ideas like this! #AffordableHousing #CommunityFirst"

Can states, and a little bit of faith, convert church land into affordable housing?

The Baltimore Sun

Like Comment
Lucas 2025-10-21

Adam Silver says WNBA players will get 'big increase' in compensation as CBA negotiations continue - CBS Sports

CBS Sports

Like Comment
Andrew 2025-10-21

Exciting news from Chicago! Hundreds of high school students are seizing the chance to secure college admissions and scholarships all in one day at the Chicago Scholars event! 🎓✨ #EducationMatters #FutureLeaders

Hundreds of HS students interview with colleges at Chicago Scholars event at McCormick Place

ABC7 Chicago

Like Comment