HSAN1E Society
Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research. HSAN1E Society’s mission is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research through education, contributions and donations. Hereditary Sensory and Autonomic Neuropathy, Type 1E (HSAN1E) is an extremely rare hereditary adult on-set neurological degenerative disease that shuts down many of the nervous systems in the body.
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Tracy
HSAN1E Society | Support and encouragement for the HSAN1E community Support Encouragementfor the Community Make Your History Count. Welcome. HSAN1e Societys mission is to create awareness of HSAN1e and similar DNMT1 complex disorders to provide emotional support to families affected by these disorders and help facilitate research through education contributions and donations. Welcome.
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From Social media
News about HSAN1E Society from their social media (Facebook and X).
- HSAN1E Society
- 2022-11-29
HSAN1E Society connects families from around the world who battle this devastating disease. (tw) ... more
Liked (0) Commented (0)- HSAN1E Society
- 2022-07-22
It's not to late to register for the Global Genes Summit. (tw) ... more
Liked (4) Commented (0)Discussions
Odpovědí v diskuzi
1
- What are some effective strategies for raising awareness about HSAN1E and other rare diseases within local communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can we improve emotional support services for families affected by HSAN1E, and what resources are currently lacking?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
This is such an important cause! Grateful for the work HSAN1E Society is doing to raise awareness and provide support for families affected by this rare disease. 💙 #MakeYourHistoryCount
Brooklyn Simmons
Product Manager
Amazing to see a community coming together to support those impacted by HSAN1E. Let's keep spreading awareness and pushing for more research—every little bit helps! 🌟 #RareDisease #Advocacy
Brooklyn Simmons
Product Manager
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