• Fund Raising and/or Fund Distribution

Familial Dysautonomia (FD) Foundation, Inc.

FD Foundation is the leader in FD treatment and research.

• Private Operating Foundations

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

• Epilepsy Research

Bridge the Gap

SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1 To serve, educate and fund research for families coping with the effects of SYNGAP mutations.

• Health - General & Rehabilitative N.E.C.

Hereditary Neurological Disease Centre Inc

Official Twitter for Genentech. See our community guidelines here: https://t.

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

• Birth Defects, Genetic Diseases Research

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Alliance/Advocacy Organizations

Jansen De Vries Syndrome Foundation

The Jansen de Vries Syndrome (JdVS) Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to JdVS Foundation are tax-deductible.

• Alliance/Advocacy Organizations

Baker-Gordon Syndrome Foundation

The BakerGordon Syndrome Foundation was founded to help families affected by this syndrome make connections with one another.

• Birth Defects, Genetic Diseases

Cure SPG4 Foundation

Home About SPG4 About Us Research Resources Contact More.

• Birth Defects, Genetic Diseases

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.