• Special Ed Institutions/ Schools for Visually or Hearing Impaired, Learning Disabled

• 1.

NEW YORK PARENT ASSOCIATION FOR DEAF-BLIND INC

NYPADB supports families of people with Deaf-Blindness or Dual Sensory Loss.

• Eye

• 2.

HEAR SEE HOPE

We are a not for profit in search of funds to sustain the fight against Usher syndrome.

Foundation Fighting Blindness, Inc.

We are the driving force in the global development of treatments and cures for blinding diseases.

• Unknown

• 4.

Usher Syndrome Society Inc

A nonprofit that uses arts, educational events, & collaboration to raise awareness for Usher syndrome The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome.

USHER 1F COLLABORATIVE INC

Founded in December 2013, Usher 1F Collaborative is a 501c3 nonprofit foundation whose mission is to fund medical research to find an effective treatment to save or restore the vision of those with Usher Syndrome type 1F.

• Specifically Named Diseases

• 6.

USHER 2020 FOUNDATION INC

Bringing therapies into clinical trials for those losing vision due to Usher Syndrome and retinitis pigmentosa.

• Birth Defects, Genetic Diseases Research

• 7.

Spata Foundation Inc

Our mission is to advocate, educate, and raise funds for research towards SPATA5 & SPATA5L1 Disorders The SPATA Foundation's Mission is to advocate, educate, and drive research towards SPATA5 and SPATA5L1 Related Disorders.

• Alliance/Advocacy Organizations

• 8.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

• Patient Services�Entertainment, Recreation

• 9.

Coalition For Usher Syndrome Research

Usher Syndrome Coalition: Connecting the global Usher community.