• Epilepsy

• 1.

Epilepsy Study Consortium Inc

Home Our Mission The Epilepsy Study Consortium TESC is a group of scientific investigators from academic medical research centers who are dedicated to accelerating the development of new therapies in epilepsy to improve patient care.

• Medical Specialty Research

• 2.

Global Society of Rare Genitourinary Tumors Inc

International Society dedicated to improving the care of rare GU tumors through cutting edge science and the promotion of education.

• Alliance/Advocacy Organizations

• 3.

Integrita Healthcare Educational Foundation

Leverage proven advocacy strategies to educate and support patients and those who care for them in disease states that are rare and/or poorly served by current advocacy organizations.

• Birth Defects, Genetic Diseases Research

• 4.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Cancer Research

• 5.

RARE CANCER RESEARCH FOUNDATION

Dedicated to finding cures for rare cancers.

• Research Institutes and/or Public Policy Analysis

• 6.

PARTNERS IN INNOVATION EDUCATION AND

Partners in Innovation Education and Research Members of PIER Consortium What is PIER.

Rare Access Action Project Inc

RARE ACCESS ACTION PROJECT Providing Education Advocacy Access On Behalf of Rare Disease Patients and Families.

• Specifically Named Diseases Research

• 8.

ANN STEFFENS SCLERODERMA RESEARCH FOUNDATION INC

www. steffens-scleroderma. org Collaboration Drives Everything We Do The Steffens Scleroderma Foundation collaborates worldwide with researchers clinicians organizations and patients to improve the lives of those affected by rare diseases.

• Management & Technical Assistance

• 9.

CENTER FOR RESEARCH EDUCATION SCIENTIFIC

Educate Evolve Empower Center For Research Education Scientific Therapeutics Inc CREST Center For Research Education Scientific Therapeutics Inc CREST is founded in 2018 with the vision of bridging the gap between medical experts and fraternities of different nations.