• Private Grantmaking Foundations

• 1.

Bristol-Myers Squibb Foundation Inc

We work every day to transform patients’ lives through science.

• Epilepsy

• 2.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

Center for Ehlers Danlos Syndrome Alliance Inc

Proudly helping those who have EDS and bring awareness to the condition.

• Birth Defects, Genetic Diseases

• 4.

Charlie Elenore Foundation

About Our Programs News Events Contact More.

• Fund Raising and/or Fund Distribution

• 5.

Brian Morden Foundation

The Brian Morden Foundation has three goals: • Fund Ewing's Sarcoma and childhood cancer research.

• Birth Defects, Genetic Diseases Research

• 6.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Specifically Named Diseases

• 7.

Eds Resource Network

EDS Resource Network (EDSRN), a 501(c)(3) nonprofit of Utah, provides aid, education, and support to the Ehlers-Danlos Syndromes (EDS) patients, caregivers, and medical providers across the state.

• Birth Defects, Genetic Diseases Research

• 8.

ADLD CENTER

The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy ADLD and developing a network of clinicians researchers patients and their caregiversadvocates in order to raise funds as we move forward towards finding a cure.

EHLERS-DANLOS SOCIETY

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.