• Medical Specialty Research

• 1.

The J David Gladstone Institutes

Gladstone's mission is to drive a new era of discovery in disease-oriented science and to mentor tomorrow’s leaders in an inspiring and diverse environment.

Henry M Jackson Foundation for the Advancement of Military Medicine

HJF partners to advance military medicine for our nation’s warfighters.

• Fund Raising and/or Fund Distribution

• 3.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

• Fund Raising and/or Fund Distribution

• 4.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

JAXENS JOURNEY INC

Our 2 year old son fought a very hard 5 week battle with pineoblastoma, passing in July of 2016.

Odylia Therapeutics Inc

Nonprofit biotech accelerating drug development for #rarediseases.

• Alliance/Advocacy Organizations

• 7.

Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

PACIFIC NORTHWEST RESEARCH INSTITUTE

PNRI unravels the powerful mysteries of genetics to drive future medical breakthroughs.

• Birth Defects, Genetic Diseases

• 9.

n-Lorem Foundation

Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life Creating a better future for nano-rare, one patient at a time.