Ella Jewell Inc

Raise awareness in the area of Neutropenia and Funds to put towards research for Neutropenia and childhood bone marrow failure disorders; to one day find a cure and make a difference.

• Nonmonetary Support N.E.C.*

• 2.

N 1 Collaborative Inc

OUR MISSION IS TO MAKE INDIVIDUALIZED MEDICINES ROUTINELY AND RAPIDLY ACCESSIBLE TO RARE DISEASE PATIENTS WORLDWIDE.

• Birth Defects, Genetic Diseases Research

• 3.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Fund Raising and/or Fund Distribution

• 4.

Friends of Nicer

NICER consortium brings together clinicians and researchers in hematology, immunology, rheumatology, ID and genetics NICER.

• Patient Services�Entertainment, Recreation

• 5.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.

HISTIOCYTOSIS ASSOCIATION INC

Dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research.

NATIONAL BONE MARROW TRANSPLANT LINK

The National Bone Marrow Transplant Link supports professionals, patients & their families navigate a bone marrow/stem cell transplant w/ psychosocial support.

• Hospital (Specialty)

• 8.

THE CENTER FOR COMPREHENSIVE CARE AND

Helping People with Blood Disorders Thrive We are the only licensed freestanding clinic in California specializing in bleeding disorders.

• Birth Defects, Genetic Diseases Research

• 9.

ADLD CENTER

The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy ADLD and developing a network of clinicians researchers patients and their caregiversadvocates in order to raise funds as we move forward towards finding a cure.