• Alliance/Advocacy Organizations

• 1.

PSC Partners Seeking a Cure

The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease.

• Museums & Museum Activities

• 2.

Histiocyte Society

The Histiocyte Society is a group of physicians and scientists committed to clinical and laboratory research into causes and treatment of histiocytic disorders.

• Epilepsy

• 3.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

• Epilepsy Research

• 4.

Bridge the Gap

SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1 To serve, educate and fund research for families coping with the effects of SYNGAP mutations.

MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION

MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community.

Vasculitis Foundation

Awareness. Support. Research. http://www.

• Diseases of Specific Organs

• 7.

Cure Vitiligo Inc

A teen-founded 501(c)(3) nonprofit organization dedicated to raising awareness about vitiligo and funds for a cure.

• Birth Defects, Genetic Diseases

• 8.

International Association of Sickle Cell Nurses and Physician ASSISTAN

International Association of Sickle Cell Nurses and Professional Associates IASCNAPA PROVIDES A PLATFORM FOR NURSES, NURSE PRACTITIONERS, PHYSICIAN ASSISTANTS SOCIAL WORKERS, SICKLE CELL ADVOCATES, AND OTHER HEALTHCARE PROFESSIONALS CARING FOR INDIVIDUALS WITH SICKLE CELL DISEASE TO IMPROVE THE CARE OF PEOPLE WITH SICKLE CELL DISEASE Home Who We Are Membership Scholarships Events Contact More Join us in the fight against Sickle Cell Disease We are dedicated nurses and professionalassociates striving to improve the lives of Sickle Cell Warriors.

• Specifically Named Diseases

• 9.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.