WILLIAMS SYNDROME ASSOCIATION INC

WSA: research, programming and support for families and caregivers affected by Williams syndrome.

• Brain Disorders

• 2.

VANISHING WHITE MATTER FOUNDATION

Our mission is to raise funds to support VWM Leukodystrophy specific research to help treat and cure this rare disease.

MOWAT-WILSON SYNDROME FOUNDATION

This is the official page for the Mowat-Wilson Syndrome Foundation.

• Specifically Named Diseases Research

• 4.

The Snow Foundation

A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.

• Fund Raising and/or Fund Distribution

• 5.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

• Alliance/Advocacy Organizations

• 6.

Jansen De Vries Syndrome Foundation

The Jansen de Vries Syndrome (JdVS) Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to JdVS Foundation are tax-deductible.

• Alliance/Advocacy Organizations

• 7.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

• Nonmonetary Support N.E.C.*

• 8.

Global Neuro Ycare Inc

The mission of Global Neuro YCare is to educate through the creation and translation of materials and programs for children, youth and families; advocate with national and international organizations to guide the creation of regional, cultural and country specific programming; and support research addressing the needs and experiences of young carers.

• International Relief

• 9.

FRIENDS OF IPWSO

Friends of IPWSO raises money to improve the lives of children and adults who are born with Prader-Willi Syndrome.