• Diseases, Disorders, Medical Disciplines N.E.C.

• 1.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

Center for Ehlers Danlos Syndrome Alliance Inc

Proudly helping those who have EDS and bring awareness to the condition.

• Patient Services�Entertainment, Recreation

• 3.

EDS Guardians, Inc

World's 1st patient-to-patient "pay-it-forward" 501(c)(3) nonprofit charity that helps Ehlers-Danlos Syndromes patients who lack support and need vital care.

Connective Tissue Coalition, Inc

Empowering Progress; Inspiring Hope Our Mission: The Connective Tissue Coalition (CTC) drives research, raises awareness, and provides resources for individuals affected by Ehlers-Danlos, Marfan, and Loeys-Dietz Syndromes.

• Specifically Named Diseases Research

• 5.

Plasminogen Deficiency Foundation

A 501(c)(3) public charity dedicated to improving the lives of patients with plasminogen deficiency (PLGD).

Ehlers-Danlos Research Foundation

We strive to promote evidence-based Neuromuscular and Musculoskeletal medicine for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder.

• Fund Raising and/or Fund Distribution

• 7.

Care and Cure Institute

https://t. co/wyxwwiAMoQ is a tech-for-good nonprofit that simplifies modern fundraising for charitable organizations of all sizes.

• Specifically Named Diseases

• 8.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.

EHLERS-DANLOS SOCIETY

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.