• Private Operating Foundations

• 1.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

• Specifically Named Diseases Research

• 3.

GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

• Specifically Named Diseases

• 5.

YBRP Inc

YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.

• Specifically Named Diseases

• 6.

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

• Birth Defects, Genetic Diseases

• 7.

Mitchell and Friends Foundation

To raise awareness of Mitchell Syndrome and support research into possible treatments and cures Raising awareness of Mitchell Syndrome and supporting families and children with this rare neurological disease.

• Specifically Named Diseases

• 8.

The Kennedy Ladd Foundation, Inc.

The Kennedy Ladd Foundation is committed to ending the suffering caused by MPS1, a progressive and life-threatening disease.

• Fund Raising and/or Fund Distribution

• 9.

THE CHAMP FOUNDATION

Mission The Champ Foundation supports research toward better treatment and a cure for single largescale mitochondrial deletion syndromes SLSMDS like Pearson syndrome.