• Diseases, Disorders, Medical Disciplines N.E.C.

• 1.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Birth Defects, Genetic Diseases

• 2.

Gene Spotlight Inc

We are a nonprofit medical research and advocacy organization committed to spark breakthroughs in treatments and cures for rare genetic disorders, including lysosomal storage diseases, uncommon cancers and other orphan diseases.

• Fund Raising and/or Fund Distribution

• 3.

RARE GENOMICS INSTITUTE INC

RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.

Rare and Undiagnosed Network Inc

RUN for those affected with rare/undiagnosed conditions: Raise awareness.

• Fund Raising and/or Fund Distribution

• 5.

Gardaccess Inc

Accelerating access to quality healthcare Addressing Unmet Needs in Rare Diseases Access to lifesaving medicine programs in low and middleincome countries LMIC presents a significant unmet need for patients living with rare disorders.

• Fund Raising and/or Fund Distribution

• 6.

Rare Village Foundation

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES We Empower Families to Create Cures for Rare Disease.

• Fund Raising and/or Fund Distribution

• 7.

Childrens Rare Disease Organization Inc

Many children are living with a rare disease.

Upequity Corporation

RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.

• Alliance/Advocacy Organizations

• 9.

Rare Disease Company Coalition Inc

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve.