• Museums & Museum Activities

• 1.

Prader Willi Association of New England Inc

PWS is a non-inherited genetic disorder which is associated with a random deletion of the 15th chromosome.

• Public Health Programs

• 2.

United Pompe Foundation

SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

• Specifically Named Diseases

• 4.

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

PRADER-WILLI CALIFORNIA FOUNDATION

Our vision is a A Full Life Without Limits for everyone with Prader-Willi syndrome.

Prader Willi Utah Association Inc

The mission of the Utah Prader-Willi Syndrome Association is to enhance the lives of individuals and families affected by Prader-Willi syndrome.

• Down's Syndrome

• 7.

Rocky Mountain Down Syndrome Association Inc

Rocky Mountain Down Syndrome Association.

• Specifically Named Diseases

• 8.

Marshall-Smith Syndrome Organization of the USA Inc

The mission of Marshall-Smith Syndrome Organization of the USA, Inc.

• Single Organization Support

• 9.

POMPE WARRIOR FOUNDATION

A non profit organization working to educate, research, and empower individuals and families affected by Pompe Disease and other rare diseases.