• Alliance/Advocacy Organizations

• 1.

Cystinosis Research Network, Inc.

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

• Fund Raising and/or Fund Distribution

• 2.

24 Hours for Hank Inc

RAISING FUNDS FOR MEDICAL RESEARCH FOR DISEASE CYSTINOSIS 24 hours for Hank Thank you for supporting Cystinosis Research.

Cystinosis Research Foundation

The Cystinosis Research Foundation’s (CRF) mission is to find better treatments and a cure for cystinosis, a rare genetic disease that destroys every organ.

• Alliance/Advocacy Organizations

• 4.

International Cystinuria Foundation Incorporated

The mission of the International Cystinuria Foundation is to stregnthen, educate, and further the general well-being of the cystinuric community.

Hope4Harper

Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research.

• Education N.E.C.

• 6.

Aarav S Time To Shine

Our goal at Aarav’s Time to Shine is to bring awareness and raise funds to assist the Cystinosis Rese AARAVS TIME TO SHINE Home About News Donate Past Events ATTS Grand Gala 2023 More WHO WE ARE Your support is important to our work at Aarav39s Time to Shine.

• Alliance/Advocacy Organizations

• 7.

Next Generation of Cystinosis

Our vision is to be an organization run by and for adults 18 years and older affected by cystinosis.

CMT Research Foundation Inc

The CMT Research Foundation has one mission: Deliver treatments and cures for #CMT.

• Mental Health Associations - Multipurpose

• 9.

Curesz Foundation

CURESZ is Comprehensive Understanding via Research and Education into Schizophrenia.