• Birth Defects, Genetic Diseases

• 1.

NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC

National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Race for Adam Foundation

Adam Recke was diagnosed in 2005 with an extremely rare, degenerative terminal disease, Type-C Niemann-Pick Syndrome.

• Neurology, Neuroscience

• 3.

JB'S KEYS TO DMD INC

Giving boys affected by DMD the opportunity of a lifetime.

• Single Organization Support

• 4.

University of Iowa Research Foundation

THE UNIVERSITY OF IOWA RESEARCH FOUNDATION'S (UIRF) MISSION IS TO: ADVANCE, DEVELOP, INCREASE AND EXTEND THE PROGRESS OF SCIENCE AND USEFUL ARTS THROUGH ENCOURAGING AND ASSISTING INVESTIGATION, RESEARCH AND EDUCATION AT THE STATE UNIVERSITY OF IOWA BY FURNISHING THE MEANS, METHODS AND AGENCIES BY WHICH IDEAS, CREATIONS, DISCOVERIES, INVENTIONS AND PROCESSES MAY BE PROTECTED AND THE USES THEREOF DETERMINED AND SAFEGUARDED FOR THE PUBLIC, AND TO MANAGE, LICENSE AND DISPOSE OF PROPRIETARY RIGHTS IN IDEAS, CREATIONS, DISCOVERIES, INVENTIONS AND PROCESSES OF ANY NATURE; TO RECEIVE BY GIFT, GRANT, DEVISE OR BEQUEST, AND TO ACQUIRE BY PURCHASE, LEASE, EXCHANGE OR OTHERWISE, PROPERTY, BOTH REAL AND PERSONAL, EITHER AS ABSOLUTE OWNER OR AS TRUSTEE THEREOF, AND TO MANAGE AND ADMINISTER THE SAME; TO MAKE CONTRIBUTIONS, GRANTS, GIFTS AND TRANSFERS OF PROPERTY, BOTH REAL AND PERSONAL, EITHER OUTRIGHT OR IN TRUST, TO OR FOR THE BENEFIT OF THE STATE UNIVERSITY OF IOWA.

• Fund Raising and/or Fund Distribution

• 5.

Chase The Cure Inc.

Chase the Cure Inc was created to serve the Niemann Pick Type C Community.

• Specifically Named Diseases

• 6.

Wylder Nation Foundation

WARRIORS in the Fight Against Lysosomal Storage Disorders.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 7.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

• Specifically Named Diseases

• 8.

Abetalipoproteinemia and Related Disorders Foundation

Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.

• Fund Raising and/or Fund Distribution

• 9.

Life for Liam and Friends Foundation

Mission to support families who are impacted by NPC and help find a cure through connecting NPC families, spreading awareness, and supporting medical research.