Alport Syndrome Foundation Inc

Improving patient lives through education, empowerment, advocacy, and research with a vision to conquer #Alportsyndrome.

ALD Alliance

Fighting to pass Aidan's Law for National Newborn Screening for all RUSP conditions.

ALD Connect, Inc.

Our mission is to improve health outcomes for individuals with ALD by empowering patients/caregivers, raising awareness, and accelerating the translation of scientific breakthroughs into better clinical care.

• Private Grantmaking Foundations

• 4.

Brian J Kelley Foundation for Hope Inc

Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to when no child experiences the devastation of adrenoleukodystrophy (ALD) Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to a day when no child will experience the devastation of adrenoleukodystrophy (ALD).

• Birth Defects, Genetic Diseases

• 5.

Stop ALD Foundation

The Stop ALD Foundation: Adrenoleukodystrophy (ALD) therapy development, awareness, & prevention.

• Neurology, Neuroscience

• 6.

Inadcure Foundation Inc

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).

Alagille Syndrome Alliance

The Alagille Syndrome Alliance is an international support and advocacy network for people with ALGS and their families.

• Fund Raising and/or Fund Distribution

• 8.

X OUT ALD INC

X out ALD is an organization dedicated to increasing awareness of adrenoleukodystrophy and supporting research of the disease at the University of Minnesota Leukodystrophy Center.

• Fund Raising and/or Fund Distribution

• 9.

BENEFIT OTHERS FOUNDATION

Helping to overcome hardships and providing opportunities for children and their families Who We Are Benefit Others Foundation is a nonprofit 501c3 organization committed to enriching the lives of others.