Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Fund Raising and/or Fund Distribution

• 2.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

Foxg1 Research Foundation

FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders.

• Fund Raising and/or Fund Distribution

• 4.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

• Specifically Named Diseases

• 6.

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

• Fund Raising and/or Fund Distribution

• 7.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

• Birth Defects, Genetic Diseases

• 8.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.

• Specifically Named Diseases

• 9.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.