• Remedial Reading, Reading Encouragement

• 1.

Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

• Research Institutes and/or Public Policy Analysis

• 2.

Riaan Research Initiative Inc

501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.

Foxg1 Research Foundation

FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders.

• Birth Defects, Genetic Diseases Research

• 4.

Rory Belle Foundation

We are a family run foundation established to raise funding and awareness for a gene therapy cure for the NARS1 disease.

• Birth Defects, Genetic Diseases Research

• 5.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Fund Raising and/or Fund Distribution

• 6.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

• Fund Raising and/or Fund Distribution

• 7.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

• Fund Raising and/or Fund Distribution

• 8.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Fund Raising and/or Fund Distribution

• 9.

T-Bird Foundation Inc

About Us Check out our feature in Hingham Greet Magazine.