• Diseases, Disorders, Medical Disciplines N.E.C.

• 1.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

• Birth Defects, Genetic Diseases

• 3.

Aciem Charitable Foundation Inc

The ACIEM Foundation serves children with genetic errors whose life-saving treatments are under-covered by insurance and government assistance programs.

ALD Alliance

Fighting to pass Aidan's Law for National Newborn Screening for all RUSP conditions.

ALD Connect, Inc.

Our mission is to improve health outcomes for individuals with ALD by empowering patients/caregivers, raising awareness, and accelerating the translation of scientific breakthroughs into better clinical care.

• Fund Raising and/or Fund Distribution

• 6.

Patrick Allen Melvin Foundation

Partnering with nonprofit organizations and charities to raise funds and awareness for their cause.

• Fund Raising and/or Fund Distribution

• 7.

Arrivederci Ald

501(c)(3) public charity whose mission is to identify and fund medical and scientific research for treatments and a cure for adrenoleukodystrophy ARRIVEDERCI ALD IS ORGANIZED PRIMARILY FOR THE PURPOSE OF IDENTIFYING AND FUNDING SCIENTIFIC AND MEDICAL RESEARCH THAT WILL LEAD TO MORE EFFECTIVE TREATMENTS AND A CURE FOR ALD AND AMN.

• Cancer Research

• 8.

Isaac David Porogi Foundation Inc

Isaac David Porogi Foundation Home About Us Trials Donated To Get Involved Donate Blog More SUPPORT PEDIATRIC CANCER Mission Statement Our mission is to raise money to help find a cure for osteosarcoma and other pediatric cancers to award academic scholarships for youth who have been affected by pediatric cancer and provide funding for families currently going through pediatric cancer journeys.

• Fund Raising and/or Fund Distribution

• 9.

X OUT ALD INC

X out ALD is an organization dedicated to increasing awareness of adrenoleukodystrophy and supporting research of the disease at the University of Minnesota Leukodystrophy Center.