• Alliance/Advocacy Organizations

• 82.

Team Telomere

An international community for telomere biology disorders.

Down Syndrome Connection of Northwest Arkansas

Our mission is to facilitate inclusion & respect for individuals with Down syndrome within the Northwest Arkansas community, ensuring that they have access to the support and the resources necessary to reach their full potential at all stages of life.

THE DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE INC

Down Syndrome Association of Greater Charlotte - Providing information and support to individuals, families, professionals, and the community.

• Fund Raising and/or Fund Distribution

• 85.

FINDING THE CURE FOR DM FOUNDATION

Cure4DM Providing Support through Awareness, & Raising funds for Canine Degenerative Myelopathy Research Registered Charity: 1206120 The Finding the Cure4DM Foundation was sadly dissolved on the 28 February 2023.

• Birth Defects, Genetic Diseases

• 86.

Green Ivy Health Inc

WE HELP PATIENTSFIGHT vEDS FIGHT vEDS is a nonprofit organization dedicated to fighting and finding a treatment for vascular EhlersDanlos Syndrome.

Through Evelys Eyes

Our mission is to empower and assist families with children facing rare medical conditions, providing comfort, guidance, and practical assistance in their unique journeys.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Birth Defects, Genetic Diseases

• 89.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.

• Fund Raising and/or Fund Distribution

• 90.

THE CHAMP FOUNDATION

Mission The Champ Foundation supports research toward better treatment and a cure for single largescale mitochondrial deletion syndromes SLSMDS like Pearson syndrome.