Rhode Island Hospital

Providing expert care to Rhode Island and southern New England through primary care practices, urgent care facilities, and state-of-the-art hospitals.

RIVERBEND DOWN SYNDROME ASSOCIATION

The Riverbend Down Syndrome Association is a volunteer-run organization providing support and inform To advocate for the needs of individuals with Down syndrome To offer support, acceptance and encouragement for parents and families of persons with Down syndrome To increase our awareness and knowledge of issues relating to Down syndrome To educate the community about the presence, the potential and the needs to people with Down syndrome To promote inclusive environments for all persons Amplifying the voices of individuals with Down syndrome fosters acceptance promotes inclusion and advocates for their rights inspiring others to support and embrace people of all abilities.

• Alliance/Advocacy Organizations

• 777.

ARPKD/CHF Alliance

The ARPKD/CHF Alliance is only organization in the world solely committed to both Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis.

• Heart and Circulatory System

• 778.

International Society for Heart & Lung Transplants

The official Twitter account for the International Society for Heart and Lung Transplantation.

• Science, General (includes Interdisciplinary Scientific Activities)

• 779.

Florida Society for Clinical Laboratory

The Organizations primary exempt purpose is promoting the profession of clinical laboratory science and providing beneficial services to those who practice in the State of Florida.

• Fund Raising and/or Fund Distribution

• 780.

We Heart Harlie & Friends Foundation Inc

We are a Richmond based charitable non-profit foundation that seeks to help offset the financial strain of medically fragile children.

• Nerve, Muscle, and Bone Research

• 781.

FSHD Society

World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD).

• Human Service Organizations

• 782.

Genomics Organization for Academic Laboratories

GOAL IS ORGANIZED TO FACILITATE THE ADVANCEMENT AND STANDARDIZATION OF PERSONALIZED MOLECULAR DIAGNOSTICS AT ACADEMIC AND NONPROFIT ORGANIZATIONS THROUGH LEVERAGING INTER-LABORATORY INTERACTIONS, AND TO ADVANCE PATIENT CARE WITH A SUSTAINABLE, COST-EFFECTIVE AND STREAMLINED COLLABORATION AMONG ACADEMIC LABORATORY DEPARTMENTS.

• Fund Raising and/or Fund Distribution

• 783.

Tough Genes Inc

Currently, there is no treatment for IRF2BPL-Related Disorder.