• Alliance/Advocacy Organizations

• 73.

Cystinosis Research Network, Inc.

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

• Fund Raising and/or Fund Distribution

• 74.

Walking To End Duchenne Inc

Walking to End Duchenne is a nonprofit organization created by a mother joined by friends and family willing to walk in all possible directions to find the cure for Duchenne muscular dystrophy.

Coming Together For A Cure, Inc

A 501c3 nonprofit dedicated to advancing stem cell therapy for Duchenne MD and other rare diseases.

Solve ME/CFS Initiative, Inc.

Making ME/CFS, Long Covid & post-infection diseases widely understood, diagnosable, & treatable.

• Specifically Named Diseases Research

• 77.

Recurrent Meningitis Association Inc

To support those affected by Recurrent Meningitis and help fund research to find a cure.

• Fund Raising and/or Fund Distribution

• 78.

Finns Friends

Providing Family Assistance to families affected by Duchenne Muscular Dystrophy.

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

• Birth Defects, Genetic Diseases Research

• 80.

ADLD CENTER

The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy ADLD and developing a network of clinicians researchers patients and their caregiversadvocates in order to raise funds as we move forward towards finding a cure.

• Alliance/Advocacy Organizations

• 81.

LGMD AWARENESS FOUNDATION INC

Advocating - Educating - Celebrating limb-girdle muscular dystrophy (LGMD) MeetGirdie LGMD Awareness Day Toolkit Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limbgirdle muscular dystrophy LGMD and champion the cause for improved access to diagnosis care and treatment for those living with this condition.