ELS FOR AUTISM FOUNDATION

Els for Autism Foundation was established in 2009 by Ernie and Liezl Els, and Marvin R.

Foundation for Angelman Syndrome Therapeutics

FAST is the premier patient advocacy organization working to cure Angelman syndrome.

• Private Operating Foundations

• 75.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

Hunters CMT4B3 Research Foundation Inc

Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases.

• Birth Defects, Genetic Diseases Research

• 78.

Dyrk1a Syndrome Us

Official Facebook Page for DYRK1A Syndrome International Association a nonprofit for DYRK1A Syndrome.

United MSD Foundation

Our mission is simple, yet powerful: To cure Multiple Sulfatase Deficiency.

• Patient Services�Entertainment, Recreation

• 80.

Idefine Inc

IDefine is committed to identifying life-changing treatments & cures and building community for those with Kleefstra Syndrome and intellectual disabilities.

• Specifically Named Diseases

• 81.

GLOBAL DARE FOUNDATION

Do you have Refsum Disease. Defeat Adult Refsum Everywhere Global DARE Foundation Awarded Prestigious Chan Zuckerberg Initiatives Rare as One Program Grant We DARE toBelieve Driving research is at the center of what we do because we DARE to believe there is a cure for Adult Refsum Disease.