THE NEUROMUSCULAR DISEASE FOUNDATION

NDF is a nonprofit whose mission is to raise awareness and encourage testing for HIBM and to find a cure for neuromuscular diseases, including HIBM.

• Fund Raising and/or Fund Distribution

• 74.

Global Friends Network

Danny and Friends is a nonprofit organization that serves Indian children and families affected by Muscular Dystrophy.

• Birth Defects, Genetic Diseases Research

• 75.

Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

• Specifically Named Diseases

• 76.

Project CASK

An innovative rare disease non-profit driving breakthroughs in treatments and a cure for CASK gene disorders.

United MSD Foundation

Our mission is simple, yet powerful: To cure Multiple Sulfatase Deficiency.

• Fund Raising and/or Fund Distribution

• 78.

Seth Project

Our mission is supported by donors like you.

• Birth Defects, Genetic Diseases

• 79.

Therapies for Inherited Neuropathies Inc

Identifying and advancing research & therapies that bring solutions to CMT patients.

• Alliance/Advocacy Organizations

• 80.

LGMD AWARENESS FOUNDATION INC

Advocating - Educating - Celebrating limb-girdle muscular dystrophy (LGMD) MeetGirdie LGMD Awareness Day Toolkit Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limbgirdle muscular dystrophy LGMD and champion the cause for improved access to diagnosis care and treatment for those living with this condition.

• Specifically Named Diseases Research

• 81.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.