ALSTROM SYNDROME INTERNATIONAL

To provide support, information, & coordination worldwide in order to treat and work to cure Alstrom.

HAIRY CELL LEUKEMIA FOUNDATION

Official Twitter profile for the Hairy Cell Leukemia Foundation, a nonprofit dedicated to patient education and research in HCL.

• Health - General & Rehabilitative N.E.C.

• 660.

Sammys Friends Foundation

Supporting parents of children with chronic illness Sammys Friends Foundation is now a 501C3 Welcome to Sammys Friends Foundation Sammy was a sweet baby boy who loved cuddles bath time and the good oldies songs.

• Christian

• 661.

Jack S Angels Inc

Jack039s Angels Foundation Donate Jacks Angels Spirit Childhood Cancer Talk Radio Moonshot4Kids at the White House Support H.

• Specifically Named Diseases

• 662.

PERTHES KIDS FOUNDATION

Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.

JAXENS JOURNEY INC

Our 2 year old son fought a very hard 5 week battle with pineoblastoma, passing in July of 2016.

• Fund Raising and/or Fund Distribution

• 664.

Arrivederci Ald

501(c)(3) public charity whose mission is to identify and fund medical and scientific research for treatments and a cure for adrenoleukodystrophy ARRIVEDERCI ALD IS ORGANIZED PRIMARILY FOR THE PURPOSE OF IDENTIFYING AND FUNDING SCIENTIFIC AND MEDICAL RESEARCH THAT WILL LEAD TO MORE EFFECTIVE TREATMENTS AND A CURE FOR ALD AND AMN.

• Birth Defects, Genetic Diseases

• 665.

Skraban-Deardorff Syndrome Foundation

The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome.

• Patient Services�Entertainment, Recreation

• 666.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.