Browse

Similar organisations to Rare Disease Company Coalition Inc

Community Rebuilding
  • Community Improvement, Capacity Building N.E.C.

  • 658.

Health Resources in Action, Inc.

HRiA partners with individuals, organizations, and communities to transform the practices, policies, and systems that improve health and advance equity.

Social Rank

404

Location

Boston

View
Community Rebuilding

ALS NEVERSURRENDER FOUNDATION

Advancing ALS / MND research through the use of technology home PATIENT CENTERED OUTCOMES RESEARCH ALS MND Progression Tracker Research Data Putting wellness tracking and research in the palm of your hand PRECISION PATIENT RESEARCH Your health monitoring should happen more than just four times a year The ALS iNVOLVE App will let you track changes on a daily weekly monthly basis through a series of short simple activities MOBILE RESEARCH APP BIOMETRICS AND TELEMETRY MEDICATIONS AND TRIALS CLINICAL SUPPORT TEAMS Elevating both Clinic Support and ClinicalTrials OUR TEAM Our dedicated group of advisors from the top Universities Medical Centers and Technology Companies ALS NeverSurrender Foundation .

Location

Lakewood

View
Community Rebuilding
  • Specifically Named Diseases Research

  • 660.

Mind First Foundation

Rapid Deployment Vaccine Collaborative.

Social Rank

1931

Location

Weston

View
Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 661.

Clubfoot Research Foundation

The Clubfoot Research Foundation was founded by patient families for patient families and our mission is to educate and support all touched by CLUBFOOT/CTEV, and to sponsor or support new genetic research in order to increase therapy options and improve patient quality of life.

Location

FRISCO

View
Community Rebuilding
  • Alliance/Advocacy Organizations

  • 662.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

Location

Hanscom AFB

View
Community Rebuilding
  • Specifically Named Diseases

  • 663.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

Social Rank

1141

Location

Austin

View
Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 664.

Arrivederci Ald

501(c)(3) public charity whose mission is to identify and fund medical and scientific research for treatments and a cure for adrenoleukodystrophy ARRIVEDERCI ALD IS ORGANIZED PRIMARILY FOR THE PURPOSE OF IDENTIFYING AND FUNDING SCIENTIFIC AND MEDICAL RESEARCH THAT WILL LEAD TO MORE EFFECTIVE TREATMENTS AND A CURE FOR ALD AND AMN.

Social Rank

601

Location

Houston

View
Community Rebuilding

Fight 4 Cure, Inc.

Fight 4 Cure Inc is committed to helping one individual at a time.

Location

Raleigh

View
Community Rebuilding
  • Cancer

  • 666.

MIB AGENTS INC

MIB 'Making It Better' for Kids With Osteosarcoma through research, education, programs, & legislative action.

Social Rank

7893

Location

BARNARD

View