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Similar organisations to International Myotonic Dystrophy Organization Inc

Community Rebuilding
  • Nerve, Muscle, and Bone Research

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Litvan Neurological Research Foundation Inc

The Litvan Neurological Research Foundation Inc (LNRF) was established to strive for the discovery of a cure for neurodegenerative disorders.

Location

La Jolla

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Community Rebuilding

Veterans Health Foundation

Improving Veteran Lives Through Research and Education.

Social Rank

411

Location

Pittsburgh

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Community Rebuilding
  • Public Foundations

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James G Delmauro Foundation Inc

The Michael J. Fox Foundation is dedicated to finding better treatments and, ultimately, a cure for Parkinson’s disease.

Social Rank

1097431

Location

Rosemary Beach

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Community Rebuilding

Answer ALS

The single largest coordinated and comprehensive research effort to find a treatment or cure for ALS in the history of the disease.

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10821

Location

NEW ORLEANS

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Community Rebuilding
  • Specifically Named Diseases

  • 635.

National Parkinson Foundation Heartland

The Parkinson's Foundation makes life better for people with Parkinson's through expert care and research.

Social Rank

781210

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Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA

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Community Rebuilding
  • Birth Defects, Genetic Diseases

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Stop ALD Foundation

The Stop ALD Foundation: Adrenoleukodystrophy (ALD) therapy development, awareness, & prevention.

Social Rank

2783

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 637.

Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

Social Rank

434

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Mercer Island

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Community Rebuilding
  • Alliance/Advocacy Organizations

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Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

Social Rank

2618

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Community Rebuilding
  • Medical Specialty Research

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The American Porphyrias Expert Collaborative Inc

TO PROMOTE AND CARRY OUT RESEARCH, AND PROMOTE EDUCATIONAL ACTIVITIES, REGARDING PORPHYRIAS AND HEME BIOSYNTHESIS THROUGH DEVELOPMENT OF BEST PRACTICES, RESEARCH SUPPORT, AND EDUCATION.

Location

Bethesda

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