Cystinosis Research Foundation

The Cystinosis Research Foundation’s (CRF) mission is to find better treatments and a cure for cystinosis, a rare genetic disease that destroys every organ.

The RYR-1 Foundation

This organization is to raise awareness, educate, provide support, and raise funds for research.

• Specifically Named Diseases

• 66.

Day4Naps

Narcolepsy is a chronic neurological condition affecting approximately 1 in 2,000 people.

Burning Limb Foundation

The Burning Limb Foundation gives those suffering from CRPS and related illnesses a community resource that provides advocacy and action through a lens of compassion, hope and understanding.

• Boards of Trade

• 68.

Llrs-Asami-Na

Limb Lengthening and Reconstruction Society of North America.

• Professional Societies & Associations

• 69.

International Federation of Clinical Neurophysiology Inc

Save the Date: September 8-12, 2026—the 34th International Congress of Clinical Neurophysiology (ICCN2026), Cartagena Colombia.

• Alliance/Advocacy Organizations

• 70.

LGMD AWARENESS FOUNDATION INC

Advocating - Educating - Celebrating limb-girdle muscular dystrophy (LGMD) MeetGirdie LGMD Awareness Day Toolkit Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limbgirdle muscular dystrophy LGMD and champion the cause for improved access to diagnosis care and treatment for those living with this condition.

• Specifically Named Diseases Research

• 71.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.

• Kidney

• 72.

INTERNATIONAL SOCIETY OF GLOMERULAR

THE INTERNATIONAL SOCIETY OF We envision a future where all people with glomerular kidney disease can access accurate early diagnosis and suitable treatment to preserve the health of their kidneys.