• Specifically Named Diseases Research

• 64.

Coalition Duchenne

We're on a mission to do everything FUN to raise global awareness for Duchenne muscular dystrophy, to fund research for a cure.

LIVE RHYSSTRONG FOUNDATION

Our goal is to help the Spinal Muscular Atrophy community's efforts towards research, family support and awareness of the #1 genetic killer of infants.

• Business and Industry

• 66.

International Society of Amyliodosis

A non-profit organization promoting research, education, and clinical studies on all aspects of amyloidosis.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

Barrowfit Exercise Therapy and Wellness Inc

Personal trainer Health Wellness Coach Weight Management Specialist Delay the Disease Parkinson's trainer Our mission is to enhance the lives of individuals living with neurological conditions by providing evidence-based exercise programs.

• Nerve, Muscle, and Bone Research

• 69.

Lgmd2L Foundation

We’re a nonprofit searching for a cure for LGMD2L, a rare disease that causes muscle weakness and atrophy, pain, and eventually leads to many sufferers being unable to walk.

• Fund Raising and/or Fund Distribution

• 70.

Coopers Cure

COOPER39S CURE HOME DONATE COOPERx27S STORIES COOPER FEST COOPERx27S TRIBE CONTACT More.

• Alliance/Advocacy Organizations

• 71.

flok Health

Redefining clinical care and research priorities in metabolic health through the power of patient data.

BEYOND THE DIAGNOSIS

Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with life-altering diseases.