• Fund Raising and/or Fund Distribution

• 595.

Taylors Tale

Taylor's Tale is a public charity dedicated to the fight against CLN1 disease and other rare diseases.

National Foundation for Ectodermal Dysplasias

Use our advocacy tool to take action now and reach out to your members of Congress for support.

NATIONAL PKU ALLIANCE INC

The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.

• Fund Raising and/or Fund Distribution

• 598.

GRACE ROSE FOUNDATION

Grace Rose is a young girl living with Cystic Fibrosis.

• Health - General & Rehabilitative N.E.C.

• 599.

Alphanet Inc

Not-for-profit health management organization assisting individuals with Alpha-1 Antitrypsin Deficie AlphaNet provides health management services to individuals diagnosed with Alpha-1 Antitrypsin Deficiency.

• Specifically Named Diseases

• 600.

LHON Collective

LHON Collective is a global initiative dedicated to accelerating progress toward a cure for Leber Hereditary Optic Neuropathy (LHON) while improving the lives of people living with LHON.

• Health Support Services

• 601.

ConnectMyVariant

Prevention through Connection An innovative nonprofit that builds communities dedicated to communication with relatives about genetic testing and hereditary disease prevention Get free help reaching out to relatives and find a community of others who have your variant.

• Developmentally Disabled Services/Centers

• 602.

Down Syndrome Network of Montgomery County Inc

DSNMC empowers and supports individuals with Down syndrome, their families and the community through education, information, public awareness and advocacy.

Willamette Valley Down Syndrome Assoc

Spotlight Megan Moore is a strong selfadvocate who inspired the original foundation of The WVDSA.