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Similar organisations to EHLERS-DANLOS SOCIETY

Community Rebuilding
  • Alliance/Advocacy Organizations

  • 586.

Bobby Jones Chiari & Syringomyelia Foundation

The Bobby Jones Chiari & Syringomyelia Foundation is built on leadership, vision & commitment to find a cure for #Chiari, #syringomyelia & related disorders.

Social Rank

18280

Location

Staten Island

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Community Rebuilding

Hope4Harper

Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research.

Location

CARROLLTON

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Community Rebuilding
  • Nerve, Muscle, and Bone Research

  • 588.

FSHD Society

World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD).

Social Rank

8717

Location

Randolph

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Community Rebuilding
  • Epilepsy

  • 589.

Legacy Bridges Foundation

We're a 501c3 non-profit established to support individuals & families affected by epilepsy/seizures.

Social Rank

87

Location

Beaumont

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Community Rebuilding

Just Aphasia Stroke Knowledge Just Ask

This page is here to help spread awareness and share information about aphasia, stroke and TBI Helping to end the isolation that comes along with a communication disorder.

Social Rank

840

Location

Fiskeville

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Community Rebuilding
  • Specifically Named Diseases

  • 591.

Susan and Charles Berghoff Foundation

Our mission is to increase dementia education, caregiving resources and research, with a special focus on Lewy body disease, the second leading cause of neurodegenerative dementia after Alzheimer's disease.

Social Rank

14

Location

Morgan Hill

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Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 592.

Smashsmard, Inc.

SMARD1 is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy.

Social Rank

3199

Location

Lincolnshire

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 593.

Tango2 Research Foundation Incorporated

Our mission is to lead the way in finding a cure for TANGO2 related disease.

Social Rank

599

Location

Middletown

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Community Rebuilding
  • Nerve, Muscle, and Bone Research

  • 594.

FOX IN THE D

Bringing Parkinson's Disease awareness to the Metro Detroit area.

Social Rank

2182

Location

NOVI

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