Alport Syndrome Foundation Inc

Improving patient lives through education, empowerment, advocacy, and research with a vision to conquer #Alportsyndrome.

• Research Institutes and/or Public Policy Analysis

• 542.

Consilium Scientific Us Inc

Patients deserve better clinical research Consilium Scientific is an independent nonprofit organisation aiming to improve clinical research through scientific rigour and transparency UPCOMING EVENTS and NEWS Sign up Sign up Learn More Learn More Visit Read OUR PURPOSE Create a platform for initiatives and individuals to collaborate in improving the quality of clinical research Drive change in attitudes and practice in clinical research through education and advocacy Campaign for policy changes that will increase the value of clinical research for patients and society Consilium wins NIHR grant to lead the RareCare project BOARD OF TRUSTEES Eric Low OBE John HickmanDSc Sir Andrew Dillon Dr.

• Specifically Named Diseases

• 543.

Breaking the Ssickle Cell Cycle Foundation Inc

A non-profit organization that promotes awareness, education, and prevention of sickle cell disease.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Public Foundations

• 545.

Metrodora Foundation

Catalyzing scientific collaboration and discovery to find cures for complex chronic disorders.

• Nonmonetary Support N.E.C.*

• 546.

Gregg Pearson Foundation Inc

Provide support and assistance to organizations, families and individuals facing hardship as a result of cancer or other illness.

Revolutionize Dmdd

Revolutionize DMDD is to help transform the lives of children and adolescents suffering from Disruptive Mood Dysregulation Disorder (DMDD).

SICKLE CELL DISEASE FOUNDATION

Providing education and life-enhancing programs to individuals with sickle cell disease.

• Specifically Named Diseases Research

• 549.

SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.