Smith-Lemli-Opitz Foundation

The Smith-Lemli-Opitz Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Smith-Lemli-Opitz.

• Public Health Programs

• 56.

United Pompe Foundation

SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 57.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Nerve, Muscle, and Bone Diseases

• 58.

Cohen Syndrome Association

Welcome to the Official fan page of the Cohen Syndrome Association ®.

HOPE IN FOCUS INC

Transforming the lives of those affected by blindness from inherited retinal disease.

• Fund Raising and/or Fund Distribution

• 60.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

• Patient Services�Entertainment, Recreation

• 61.

OMSLIFE FOUNDATION INC

For research and awareness of rare deseases Home Our mission is to raise awareness of Opsoclonus Myoclonus Syndrome maintain a support network for caregivers and fund research for a cure.

• Birth Defects, Genetic Diseases Research

• 62.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Specifically Named Diseases

• 63.

Eds Resource Network

EDS Resource Network (EDSRN), a 501(c)(3) nonprofit of Utah, provides aid, education, and support to the Ehlers-Danlos Syndromes (EDS) patients, caregivers, and medical providers across the state.