Chromosome 22 Central Inc

🧬C22C official. Support & info for chromosome 22 disorders.

• Hospitals and Primary Medical Care Facilities

• 515.

North Shore Health Care Foundation

To expand equitable health care and healthy living in Cook County and champion solutions through funding, education and advocacy.

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

• International Development, Relief Services

• 517.

Helping Hands for Honduras Inc

Help us help kids with Congenital heart disease in Honduras Our priority has been to support Honduran children and young adults with Congenital Heart Disease Bring doctors to Honduras and Honduran children to the united states to perform surgery on children with congenital heart defects.

• Private Grantmaking Foundations

• 518.

India Phillips Foundation

In India’s memory we hope all really cherish what is important.

• Personal Social Services

• 519.

Dots Tots Foundation

Support to families offering foster care, children with debilitating disease, injury, and/or illness; and teenagers in their higher educational pursuits.

• Specifically Named Diseases

• 520.

Parkinsons Community Center

The center aims to provide individuals with Parkinsons the tools to live well, in addition to the mentorship and ongoing support that will allow them to establish lasting behavior changes.

• Birth Defects, Genetic Diseases

• 521.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

• Birth Defects, Genetic Diseases

• 522.

CACNA1A Foundation

Nonprofit dedicated to a brighter future for those with CACNA1A variants.