• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 496.

LYMPHATIC MALFORMATION INSTITUTE

TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA.

• Specifically Named Diseases

• 497.

Group B Strep International

Promoting awareness and prevention of group B strep disease in babies during pregnancy through early infancy Group B strep (GBS) is the #1 cause of life-threatening infections in newborns and can cause babies to be miscarried, stillborn, born too soon, die once born or have permanent handicaps.

• Other Medical Research N.E.C.

• 498.

NATIONAL TAY SACHS AND ALLIED DISEASES ASSOC OF DELAWARE VALLEY

NTSAD-DV provides free screening for Tay-Sachs and Canavan Dont make your next baby a sitting duck.

INTERNATIONAL ASSOCIATION OF HIDRADENITIS SUPPURATIVA NETWORK

IAHSN provides you with the help you need to best manage your Hidradenitis Suppurativa, while promoting research to find a cure.

• Cancer

• 500.

GORLIN SYNDROME ALLIANCE

Empowering those with Gorlin Syndrome to live rich, full, happy lives.

ANGELMAN SYNDROME FOUNDATION INC

Angelman Syndrome Foundation advances the awareness and treatment of Angelman Syndrome through education, information, research and support.

• Cancer

• 502.

VIOLET FOUNDATION FOR PEDIATRIC BRAIN

We are fighting for better treatments for pediatric brain cancers.

MAPLE SYRUP URINE DISEASE FAMILY

The MSUD Family Support Group is a 501(c)(3) non-profit organization for those with Maple Syrup Uri MSUD Is A Rare Disease MSUD is a rare disease affecting an estimated 1 in 185000 infants worldwide.

• Cancer Research

• 504.

LAUGHLIN FAMILY FOUNDATION FOR RARE CANC

EVERY CANCER DESERVES A VOICEAND A CURE RARE CANCERS ARE OFTEN MORE DIFFICULT TO PREVENT DIAGNOSE AND TREAT THAN MORE COMMON CANCERS OFTEN LEADING TO POOR PROGNOSIS AND OUTCOMES FOR PATIENTS RECENT NEWS Keep up to date on the latest from The Laughlin Family Foundation including our events and news where we are and what were doing.