Race for Adam Foundation

Adam Recke was diagnosed in 2005 with an extremely rare, degenerative terminal disease, Type-C Niemann-Pick Syndrome.

• Surgery

• 488.

Split Inc

The Transplantation Society (TTS) is an international non-profit organization that provides the focus for global leadership in transplantation.

• Birth Defects, Genetic Diseases

• 489.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Specifically Named Diseases

• 490.

PERTHES KIDS FOUNDATION

Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.

GP Bosse 4 Foundation Inc.

Our mission is to bring awareness, hope and healing to children affected by Systemic Juvenile Idiopathic Arthritis (SJIA) and Macrophage Activation Syndrome (MAS).

The Beading Hearts Overdose Loss Support Group

The Beading Hearts Overdose Loss Support Group is a New York based 501 (c) (3) public charity.

• Fund Raising and/or Fund Distribution

• 493.

Birds for Sofia Inc

We support children diagnosed with rare, inheritable diseases from Eastern Europe.

• Birth Defects, Genetic Diseases

• 494.

17q12 Foundation

Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research.

• Alliance/Advocacy Organizations

• 495.

Nrxn1 Network

Our mission is to build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 disorder.