THE NEUROMUSCULAR DISEASE FOUNDATION

NDF is a nonprofit whose mission is to raise awareness and encourage testing for HIBM and to find a cure for neuromuscular diseases, including HIBM.

• Public Health Programs

• 479.

United Pompe Foundation

SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance.

ASN Foundation for Kidney Research

Creating a 🌎 without #kidneydiseases.

• Alliance/Advocacy Organizations

• 481.

Global Alliance for Patient Access

The international network of physicians & advocates for patient access.

• Hospital (General)

• 482.

Nephronet Inc

NEPHRONET NBSP;IS NBSP;A NBSP;NETWORK NBSP;OF NBSP;DEDICATED NBSP;CLINICIANS NBSP;INVESTIGATORS NBSP;AND NBSP;AFFILIATED NBSP;SPONSORS NBSP;THAT NBSP;ARE NBSP;COLLECTIVELY NBSP;COMMITTED NBSP;TO NBSP;ADVANCING NBSP;PATIENT NBSP;EDUCATION NBSP;RESEARCH NBSP;AND NBSP;THE NBSP;REALIZATION NBSP;OF NBSP;NEW NBSP;METHODS NBSP;TO NBSP;TREAT NBSP;KIDNEY NBSP;DISEASE EXPERTISE IN ALL ASPECTS OF NEPHROLOGY Your Nephrology Specialists NephroNet brings the nephrology expertise needed to partner with our clients in all aspects of clinical research including study feasibility and site selection of nephrology research centers of excellence 400 principal investigators thoughtleader consulting subject identification and fullservice CRO services.

• Specifically Named Diseases

• 483.

Niemann-Pick Childrens Fund

Niemann-Pick Children's Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.

• Social Science Research Institutes, Services N.E.C.

• 484.

RESEARCHAMERICA

The Research. America alliance advocates for science, discovery and innovation to achieve better health for all.

• Medical Specialty Research

• 485.

HATCHING FOR HEALTH FOUNDATION

Hatching for Health was started with the goal to help children suffering from rare health conditions such as diseases, disabilities, and disorders.

• Specific Organ Research

• 486.

L-CMD RESEARCH FOUNDATION

L-CMD Research Foundation's purpose is to translate available scientific technologies into treatment Today we are one step closer to a tomorrow without LMNArelated congenital muscular dystrophy.