Pheo Para Patient Initiative Incorporated

Our Team Speakers Bureau Pheochromocytoma Paraganglioma Peer Support Newly Diagnosed Care Kits Clinical Care Guidelines Center of Excellence Program PatientFocused Research International Symposium on Pheo Peer Support 1 on 1 and monthly peer support meetings Center of Excellence Program Find an Experienced Medical Team learn more Pheo Para Educational Video Library help others Pheo Para Alliance NEWS EVENTS keeping you up to date 2025 Rare Disease Day Posted on 25th February 2025 Nominate a Phriend for a 2025 Volunteer Award.

• Human Service Organizations

• 461.

The Arc of Calhoun & Cleburne Counties

The Arc of Calhoun and Cleburne Counties serves people with intellectual /developmental disabilities in Calhoun and Cleburne Counties, Alabama.

MEDSHADOW FOUNDATION, Inc.

Independent health news site dedicated to helping people understand the risks & benefits of medicines.

• Management & Technical Assistance

• 463.

Lyfebulb Inc

Founded by @KarinLyfebulb, MD, PhD. We work to improve quality of life for those living w/ chronic disease by supporting patient-driven innovation.

• Specifically Named Diseases

• 464.

Nebraska Dyslexia Association

The Nebraska Dyslexia Association works to enhance the public's perception and understanding of dyslexia and related language/learning abilities.

• Fund Raising and/or Fund Distribution

• 465.

Heartfest Inc

A 501c3 non-profit, helping to fund Congenital Heart Defect research and Heart Camp to help enrich the lives of those born with CHD ♥️ #HalfAHeartFullOfHope Heartfest provides funds dedicated to research on the cause & prevention of Congenital Heart Defects HEARTFEST INC.

• Nonmonetary Support N.E.C.*

• 466.

N 1 Collaborative Inc

OUR MISSION IS TO MAKE INDIVIDUALIZED MEDICINES ROUTINELY AND RAPIDLY ACCESSIBLE TO RARE DISEASE PATIENTS WORLDWIDE.

• Patient Services�Entertainment, Recreation

• 467.

Childhood Leukemia Warriors Foundation

Childhood Leukemia Warriors Foundation provides financial support to families who have a child being The Childhood Leukemia Warriors Foundation brings leaders together to devise, implement, and fund, on a charitable basis, a helping hand to provide financial aid to families during their child's treatment for Leukemia at Northwestern Central DuPage Hospital in Winfield, Illinois, Advocate Lutheran Hospital in Park Ridge, IL, and Loyola Hospital in Maywood, IL Childhood Leukemia Warriors Foundation overall goal is providing financial support for families during their child's treatment for Leukemia.

• Medical Specialty Research

• 468.

FIBROMUSCULAR DYSPLASIA SOCIETY OF

The recognized leader in the support of Fibromuscular Dysplasia (FMD) awareness, education and research.