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Similar organisations to International Sacral Agenesis / Caudal Regression Association

Community Rebuilding
  • Research Institutes and/or Public Policy Analysis

  • 460.

Forums Institute for Public Policy A New Jersey Non Profit Corporatio

Forums Institute for Public Policy is a nonprofit, nonpartisan organization committed to promoting sound public policymaking through education, communication and research.

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Community Rebuilding

The Foundation for Peripheral Neuropathy

Improving lives of those with PN via education+awareness and pursuing advocacy+lobbying+biobank growth+research for better treatments, one day, cures Our purpose: to improve the lives of patients living with peripheral neuropathy Our mission is to dramatically improve the lives of people living with peripheral neuropathy by: -Serving as the premier resource of information for patients, their families and healthcare providers -Accelerating a cure for peripheral neuropathies -Funding collaborative efforts of leading scientists -Raising awareness of peripheral neuropathy Our Purpose We strive to improve the lives of those affected by peripheral neuropathy through awareness education advocacy and research to advance the discovery of new therapies and cures.

Social Rank

14329

Location

Buffalo Grove

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 462.

CENTRE COUNTY DOWN SYNDROME SOCIETY

The mission of the Centre County Down Syndrome Society is to provide information, support, and advocacy for individuals with Down syndrome and their families in the Centre County area.

Location

State College

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 463.

United Cerebral Palsy of Northeastern Maine

UCP of Maine is committed to advancing the independence, productivity and full citizenship of people with disabilities.

Social Rank

2879

Location

Bangor

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 464.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

Social Rank

1179

Location

Raritan

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Community Rebuilding

Beck Fahrner Syndrome Foundation

Our mission is to accelerate full spectrum research to cure Beck-Fahrner Syndrome (TET3 deficiency) and to empower affected families with information, knowledge, and connectivity.

Location

Anoka

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 466.

Lottie's Light Foundation

MISSION: Lottie's Light Foundation exists to illuminate a cure for rare diseases starting with CerTra Syndrome.

Location

Temple

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Community Rebuilding
  • Health - General & Rehabilitative N.E.C.

  • 467.

Mods4Quads

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Location

Glenwood Springs

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Community Rebuilding
  • Health - General & Rehabilitative N.E.C.

  • 468.

4P-Support Group

Our mission is to serve our membership by providing information, education and support; uniting families, researchers, and professionals; and promoting awareness and understanding of 4p- syndrome, with Wolf-Hirschhorn Syndrome as the main condition, and the related 4th chromosome abnormalities.

Location

Livingston

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